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Mumsie entered a nursing home today.

by rcs1

promoted

"Mumsie" -- my mother-in-law -- was admitted to a nursing home with a special Alzheimers/dementia wing today.  She'd been getting more physically frail of late, so Wifey and I thought it was the best move for her. An opening came up unexpectedly soon (about four and half months earlier than we thought) at one of the homes we'd checked out and liked, so we started the process that culminated today.

Below are my reflections on this momentous change; I thought I'd share them, for anyone who may have had to make similar decisions or who might yet face this difficult time of life with their own loved ones.

Crossposted on DailyKos.


open forum :: :: :: buzz-it!
It's weird, not having her here to watch over.

Karmically, I know we've worked hard over the past four years to keep her at home as long as possible; it was draining, but I honestly believe I was able to provide exemplary care as her primary caretaker, and Wifey worked her butt off to pick up the slack on the financial end as I had less opportunities for consulting over the past year and a half.  Almost as if a switch was turned on, I received a call from a company I consult through: they had a client who was explicitly requesting my services for a three day training course out of state.

In addition, I've got several writing projects that I will now have time to properly pursue -- two collaborations (one sci-fi, and one sci-fi/fantasy), plus a couple short stories and my own fiction writing.  The two collaborations and one short story will take precedence over most other writing; they, too, coincidentally started just as we began to approach different nursing homes and realized that the time had come to put Mumsie into a safer, 24-hour caregiving facility.

Life is changing, and my wife and I -- married four years, and having spent all of that time watching over her mom -- are finally beginning to emerge from the shell we've been in.  Mumsie had been functional, hiding her slowly accelerating illness fairly well until a few months before Wifey and I got married. Then, she suffered a precipitous drop in perception, cognition, memory and physical stamina and dexterity. Wifey and I put our plans to get a place to live nearby on hold, and I moved in with them.

Over the past few days, Mumsie has struggled to remember something that she wanted to tell Wifey; she appeared to know that a change was coming, and has talked often about leaving us -- sometimes, to go back to her mom, who she misses. She's made it an explicit point on many occassions to thank me for all I've done for her, even tho she can't remember a lot of it; heck, she probably can't remember any of it, other than the fact that I've been around nearly all the time lately for the past few years. I helped her get up in the morning, wash and dress, have breakfast and go to her "club" (adult daycare), meet her when she comes home and keep her busy until dinner. Wifey would generally take over for a little while then, and help Mumsie to bed. I'd come in and check on her at least once in the middle of the night, every night, and pull her covers back up over her. If she'd gotten up and wandered out of her room, I'd be the one to catch her and put her to bed, sometimes after giving her a cup of tea and a cookie.

Tonight, there's nobody in her room for me to check upon.

The big dog, confused that Mumsie isn't here, has examined her room multiple times; he's on the floor behind me now, wondering if I'll be heading out at 3 am as has become habit -- I've had virtual insomnia for the past couple months, unable to sleep because I always knew when Mumsie would be getting up and getting lost or that she'd need me to pull her blankets up for her. During those times, I'd be unable to get back to sleep without disturbing Wifey, who gets little enough sleep and has to be up by 2:30 some mornings, and 4:30 on others. To tire myself out, I'd either go for a walk or a drive. Jack -- our new malamute -- would usually accompany me.

Tonight, I'll awake as usual when Wifey's up and getting ready; I'll join her for a cup of coffee, 'cuz caffeine only serves to calm me down and put me to sleep now. When she goes off to her bleary-eyed morning, I'll return to sleep, wrapped in fuzzy comfort by the two dogs, and I'll probably automatically awaken in time to wake Mumsie...who is no longer here, and no longer in my charge. I'll know she's ok, and that she's in good hands; I'll probably putter a little to let the excess mental "wake up" processes calm, then -- finally -- get some sleep.

Tomorrow starts a new day.

I'll call to ensure that she had a good night and that the morning went ok, but won't visit until Wifey can accompany me in the afternoon. Hopefully, Mumsie will begin to adjust smoothly, and all our lives will continue along their new paths, opening new vistas and providing interesting journeys.

Just thought I'd share that with you all.  

Peace.

Display:
Good thoughts and positive energy coming your way.  We had to make the same decision with two of my grandmothers and one grandfather.  Each had their own problems that made it impossible for them to live alone and progressively so we were not able to care for them between family members either.  It isn't an easy decision and while it was a relief in many ways was also a terribly difficult move to make.  

Mumsie is blessed to have such a wonderful, loving daughter and son (I imagine that is what you are to her) to give her the care she needs and make the hard choices that will be best for everyone.  

by standingup on Tue May 22, 2007 at 12:33:27 AM EST

She's made it a point to tell me a lot, lately, how much she appreciated everything.

I think she wanted to ensure that she didn't forget to say "thank you" and knew that her memory was failing.

by GreyHawk on Tue May 22, 2007 at 01:04:07 AM EST
[ Parent ]

Please pardon my oblivity.

I had not recognized that this is the process you meant was imminent in our chat the other day, I'm working through something of a fog cloud lately.

Sorry, I remember this landmark when my Dad travelled a similar path.  It's probably not all so rosy a picture as I imagine from your note (though if it is, man, just Yaay) knowing how it's effected the time you've had available to write.  It's been cool to have had a glimpse into your relationship with her however and I figure her effusive thanks maybe a third for entertainment, a third for playful bedside manner, and the rest (I know, which is not small) for the generic 'everything'.

You could probably write it rather than taking the suggestion to read a book called "The Thirty-six Hour Day" but I figure the title is meaningful enough to summarize my appreciation for what this day can mean.  

Bon voyage, I hope it continues smoothly for you all.


by luaptifer on Tue May 22, 2007 at 03:00:22 AM EST
[ Parent ]

And you're right -- we've got, and read, The Thirty-Six Hour Day.

Caretaking can lead one to wish for the availability of temporal flow control devices; there's never enough time to get everything you want to do finished -- or sometimes even started -- within a day, and yet we constantly found ourselves eeking out extra hours within the 24-hour periods that marked each day.

by GreyHawk on Tue May 22, 2007 at 05:10:29 AM EST
[ Parent ]

My thoughts are with you.  I know how hard these decisions are and may be faced with making it myself someday soon. My mom is 98 and we have been blessed that she is still relatively healthy, but we had a terrible scare with her last year and thought she would have to go to a nursing home.  It was one of the hardest things I have had to think about.  Fortunately I was able to find help to come in and keep an eye on her. That and her life alert necklace have allowed her to remain in her own home -- but it is one day at a time.  

by roxy317 on Tue May 22, 2007 at 12:55:41 AM EST
keep your mom home; we held on to Mumsie as long as we could. I hope your mom is with you for a very long, and very healthy, time.

by GreyHawk on Tue May 22, 2007 at 01:06:24 AM EST
[ Parent ]
Mumsie has been blessed in "son-in-laws."

You know she, Wifey, and you are in our hearts.

by Cho on Tue May 22, 2007 at 09:41:01 AM EST

Perhaps, conversely, this son-in-law was blessed to have Mumsie -- the person who undergoes the changes is at the mercy of the disease, and the person that s/he turns into can be quite different than the one s/he used to be; I got lucky, in that I "clicked" in a manner that took advantage of my training, experience, career opportunities and warped personal humor.

;)

by GreyHawk on Tue May 22, 2007 at 02:15:44 PM EST
[ Parent ]

Thank you, GreyHawk, for these words, which evoke a world of decency and kindness that now seems so often lost to greeed.

by Tigana on Wed May 23, 2007 at 12:34:41 PM EST


by GreyHawk on Wed May 23, 2007 at 11:02:59 PM EST
[ Parent ]
First, it is inspiring to know that at 98 she is still able to live alone.

I went to a conference at George Mason University the last two days on the topic of mind/brain research. I will write a bit more about it later on. Some of it was very interesting and some was downright Cheney-weird about robot military who decide their own targets. Spin that one out.

I am writing here because there was a mention of the kind of things that can come out of the latest generation of research. One of these is a wheel-chair like apparatus that allows a frail older person to manage to get around the house and cook etc. It would have automatic arms to get things, and ability for the person to elevate herself, and so on.

Such devices might be available even though they are not widely marketed. I am hoping to follow up on the conference and perhaps I can find out if you are interested in pursuing something like this.

by carol white on Wed May 23, 2007 at 05:32:18 PM EST

about; if you can post something about it, that would be great.

I'm not sure how well it could work with Alz or dementia patients without some major advances in expert systems and artificial intelligence -- there would be a lot of interesting synaptic lapses to compensate for -- but for homebound and invalids who were otherwise mentally acute, it could be a godsend.

by GreyHawk on Wed May 23, 2007 at 11:40:52 PM EST
[ Parent ]

I truly believe that your loving care would have registered with her, even if she was increasingly limited by loss of mental function.

I know most of you will not agree with me, but I was very touched by Terry Schiavo's parents and it seemed to me that even if they misunderstood that her apparent responsiveness was deceptive, they were not ghouls. To my mind ther continued love for their daughter was a good thing.

At the conference I mentioned just above this, mention was made of a really startling experiment. A woman who was apparently in a vegetative coma, by all of the measures applied to Schiavo and other such individuals. Nonetheless the experimenter put her in an advanced MRI device (it is called fMRI) and after she was hooked in they asked her to think of a tennis match. Her brain waves were like those of a normal subject. Then they gave her other instructions, such as think of walking through your house, and then they asked her to interpret an ambiguous sentence that was spoken to her. In each case her brain waves would change in a manner like that of a normally conscious subject.

The woman cannot communicate and has apparently very low brain function but yet........   The scientist who referred to this experiment said perhaps in future there will be devices to allow people who cannot communicate normally still to use what brain function they have to communicate to others.

This of course will not help your mother-in-law but I think the spirit you had in taking care of her is reflected more abstractly in the neuroscientists who are thinking of how they could address that which still remains of the spirit of people who are severely brain damaged.

I think love is important. Thanks for your communication.

by carol white on Wed May 23, 2007 at 05:41:37 PM EST

This is a link to a Science magazine article from last year, with current comments.

Mention was made of this research that I think was highly provocative. It involves a study of a woman presumably in a vegetative coma who apparently responded to instructions mentally. http://www.sciencemag.org/cgi/content/full/313/5792/1402?maxtoshow=&HITS=10&hits=10&RESU LTFORMAT=&andorexacttitleabs=and&fulltext=vegetative+state&andorexactfulltext=and&se archid=1&FIRSTINDEX=0&resourcetype=HWCIT


by carol white on Wed May 23, 2007 at 05:56:44 PM EST
[ Parent ]

Studying of mind/brain functions was always something that fascinated me; I think it is one of the reasons I studied AI, expert systems and robotics as part of my college education, and perhaps why I find the study and assistance of folks suffering from dementia to be so rewarding -- all that, of course, came into play when I was helping Mumsie and continues through my visits with her in her new home.

There's a lot of underlying potential in the as-yet undiscovered areas of the brain and the mind/body relationships encapsulated within; we haven't even scratched the surface yet.

by GreyHawk on Wed May 23, 2007 at 11:44:33 PM EST
[ Parent ]

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